Karen was diagnosed with eosinophilic asthma in 2021 and is currently participating in an asthma clinical trial through the British Research Panel. Having always lived an active and healthy life, this diagnosis came as shock and has drastically changed her life.
“I’d never had asthma in my life, and I was super fit. I went to the gym and ran every day and did karate three times a week. Now I just feel like a blob because of all the steroids,” explains Karen.
As a result of her experiences with this life changing condition, she wanted to participate in the clinical trial to help others like her. Additionally, through joining the webinar she hoped to be a voice for these people and share the perspective of someone living with this condition and how it affects their daily life and trial participation.
Becoming a Voice for Patients
The Trailblazer webinar was co-hosted by Greenphire and CISCRP and aimed to understand patients’ preferences and barriers for participating in clinical trials. With Karen being a part of the panel, it was an opportunity for the patient voice to be heard.
“The main reason why I took part in this webinar was to be a voice for people with conditions like mine,” shared Karen.
Sharing how much value patient insight brings, Karen added:
I think it’s important that the patients’ voice is heard, because sometimes you don’t understand things unless it happens to you. You can step into other people’s shoes, but when you know how it feels, the thoughts and feelings of participating, it’s important that you’re able to speak up about it.”
Karen was diagnosed with eosinophilic asthma in 2021 and is currently participating in an asthma clinical trial through the British Research Panel. Having always lived an active and healthy life, this diagnosis came as shock and has drastically changed her life.
“I’d never had asthma in my life, and I was super fit. I went to the gym and ran every day and did karate three times a week. Now I just feel like a blob because of all the steroids,” explains Karen.
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As a result of her experiences with this life changing condition, she wanted to participate in the clinical trial to help others like her. Additionally, through joining the webinar she hoped to be a voice for these people and share the perspective of someone living with this condition and how it affects their daily life and trial participation.
Becoming a Voice for Patients
The Trailblazer webinar was co-hosted by Greenphire and CISCRP and aimed to understand patients’ preferences and barriers for participating in clinical trials. With Karen being a part of the panel, it was an opportunity for the patient voice to be heard.
“The main reason why I took part in this webinar was to be a voice for people with conditions like mine,” shared Karen.
Sharing how much value patient insight brings, Karen added:
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“Karen’s concrete, real-life account of her experiences was a highly valuable look into what it means to be an asthma patient participating in a trial,” she continues.
We are proud to give patients the opportunity to speak up and we continue to strive towards making research more patient focused. Hearing how the British Research Panel’s work has benefitted our members is also extremely rewarding.
“It’s thanks to guys like you that research is being done so that better medications can be found,” shares Karen.
Tell us in the comments below, how you think research can be improved!
Written by
Eloise Healey